Monday, May 12, 2014

Gluten, gluten, gluten - Post from the Past

I originally posted this in April 2010 - in honour of Celiac Awareness month, I'm posted it again.

********************
I know, you're tired of hearing about it.  You're all like "Bron, we get that you used to be gassy and depressed, but seriously, if we have to hear about your diet one more time, we're going to force feed you pasta."  I know.  Shush, it's okay.

SUCK IT UP.  It's my site and I will talk about farts and wheat if I want to.

This week has been a bit of an eye opener for me.  Celiac disease in my own home is relatively easy.  Sure, I sometimes want to bury my face in flour and breathe deeply, but that could happen to anyone.  For the most part, I make good food for me and am a responsible Gluten-holic.  I can't have it, but I want it desperately.  I behave, but only because I know if I don't, it will hurt me.

This week, I've been at a conference.  One where I did not have time nor place to tell them I could not eat gluten.  One that has served meals of pancakes (breakfast), pasta (lunch on Thurs), pirogies (lunch on Friday -- I always thought it was spelled perogies?) and snacks of cookies and pecan pie.

I came awful close to attacking people for what was on their plates.  I talked to the wait staff and the chef has been amazing enough to make me special meals.  He's been a dream and the serving staff have been awesome.  PS, the Saskatoon Radisson rocks.  Even though their sleep beds suck, but they can't help that.

However, on Thursday night, unbeknown to me, I got some gluten in something at a local restaurant.  The one who swore that item was gluten free.  Not so much, but what can you do?

Well, what I can do is be thankful I had a room alone.

Now, today I felt a ton better and I started talking to a couple of like minded souls about our bowels.  It lead me to think about how grateful I am for this diagnosis and the things I had which I do not have any longer.  Without futher ado, I give you the list!

Bold is what I had.  Striked is what I no longer have.  After 20 ish days!!!  Get ready to have TMI!!!


Signs & Symptoms of Celiac Disease*

Alopecia  (I don't know what this means. UPDATE: It means hair loss.  Nope!)
Anemias, especially iron and folic (working on this!)
Anorexia
Autism
Autoimmune arthritis
Autoimmune connective tissue diseases
Autoimmune thyroiditis
Cerebellar ataxia
Cerebral and cerebellar atrophy
Cerebral calcifications
Chromosome aberrations
Chronic fatigue (getting better, now I just can't sleep!)
Chronic liver disease
Colitis
Constipation
Delayed puberty
Dental enamel defects (permanent damage)
Depression
Down’s syndrome
Early menopause
Febrile seizures
Gallbladder dysfunction
Gallstones
IgA deficiency
IgA nephropathy
infertility (scariest possibility)
Insulin-dependent diabetes mellitus
Intestinal Cancers
Kidney Stones
Low Calcium
Low Iron
Low Magnesium
Low Vitamin A
Low Vitamin D
Low Vitamin K
Low Zinc
Mild ataxia
Monoarthritis
Muscular hypotonia
Neurological disorders
Obesity (well, I'm "overweight" so says Wii, but I'm getting better!)
Obstructive pulmonary disease
Osteomalacia
Osteoporosis (on my way, but putting a stop to it!)
Pancreatic insufficiency
Pica
Pulmonary bleeding
Retarded motor development
Rickets
Sacroileitis
Schizophrenia
Short stature
Single generalized seizures
Spontaneous, low-impact fractures
Systemic lupus erythematosus
White-matter brain lesions


Symptoms and Conditions Associated with Gluten Sensitivity

Craving for wheat/gluten or inability to stop eating it
Obesity
Allergies, asthma
Sinus congestion, post-nasal drip
Arthritis
Joint and muscle aches
Diarrhea and/or constipation
Gas, bloating, abdominal pain
IBS, colitis, gastritis
Psoriasis, eczema or unexplained rash
Depression, anxiety or mood-swings
Hormonal imbalance
Neurological disorders
Memory loss
Unexplained Chronic Fatigue
Fibromyalgia
Increased liver enzymes
Frequent canker sores
Iron-deficiency anemia
Headaches / Migraines (near headache free for the first time in ~ 7 years!)
Hyperactivity
Osteoporosis
Dental problems
Short stature

*Info from glutendoctors.com

This is the greatest thing for me.  The pain is going away.  If I keep this up, I will not be in pain except for rare occasions rather than all the time.  It keeps me going.

It keeps me from killing small children for their chicken fingers.  And that is all that matters.

8 comments:

  1. these are great tips and in hopes it helps someone

    ReplyDelete
    Replies
    1. Thanks, Rambling! I hope it does too.

      Delete
  2. Thanks for sharing, I don't know much about this disease, but with your help I have a little better understanding. I'm glad you are figuring it out :)

    ReplyDelete
  3. Wow, the lists were interesting - thanks! I'm still learning about it and so far (thankfully) we don't have any sensitivities in our family. My friend has it though and the same thing happened to her in a restaurant!! I think they need to educate the food workers a bit better, huh?

    ReplyDelete
    Replies
    1. I think the staff at restaurants are getting better, but it's a constant process. A lot of places, if you tell them you have Celiac disease (and not just a preference) they will be extra careful. One place at a time!

      Delete
  4. It's amazing how your diet can affect you. Last year our family gave up gluten and sugar as part of this healthy challenge bet I dreamed up, mainly to help me lose a few pounds. We had no idea that we'd all feel so much better without it. Now we eat gluten rarely, by choice. And we always feel pretty crappy when we do!

    ReplyDelete
    Replies
    1. It makes a huge difference, Dani! I accidentally got glutened a week or so ago and I have the worst rash ever!! Not to mention all the other things that come with it.

      Delete

As much as I like to hear myself talk, I like to hear from you too!